Fibromyalgia Support Network Western Australia Inc

These links will take you to other websites that we have found informative and useful.

• Fibromyalgia Support Network WA https://www.facebook.com/groups/Fibro.Support.WA/ https://www.facebook.com/groups/Fibro.Support.WA/ FACEBOOK GROUP . Join our Facebook Group and chat, share and ask questions. There are over 300 members , which gives you access to a huge pool of knowlege and experiences. Posted January 23, 2012 at 9:34 PM

• A Framework for Fibromyalgia Management for Primary Care Providers www.mayoclinicproceedings.org/article/S0025-6196%2812%2900299-6/fulltext www.mayoclinicproceedings.org/article/S0025-6196%2812%2900299-6/fulltext As in other chronic conditions requiring ongoing management, education plays an essential role in fibromyalgia management Posted May 18, 2012 at 12:29 AM

Support Groups for fibromyalgia and related illnesses

• Headache Help www.headachehelp.org.au/ www.headachehelp.org.au/ We actively advocate for changes to improve the lives of people with headache and migraine and those who care for them Posted November 3, 2012 at 4:33 AM

• Men With Fibro menwithfibro.com/community/index.php menwithfibro.com/community/index.php It's hard to find other men with fibro to talk to. There is a wealth of info and support on this site. Posted January 28, 2012 at 1:52 AM

• Chronic Pain Asutralia www.chronicpainaustralia.org.au/ www.chronicpainaustralia.org.au/ Dedicated to reducing the social and other barriers to living with chronic pain Posted June 15, 2011 at 12:42 AM

• www.ukfibromyalgia.com England Posted April 21, 2010 at 10:07 PM

• www.fibromyalgia-association.org England Posted April 21, 2010 at 10:09 PM

• www.fmaware.org American , Highly recommended Posted April 21, 2010 at 10:17 PM

• www.fibroaction.org/ Posted January 28, 2012 at 1:50 AM

• The Faces of Ankylosing Spondylitis thefacesofankylosingspondylitis.com/ thefacesofankylosingspondylitis.com/ Fibro patients often also suffer from this illness. This is a great blog full of information and posts about AS Posted June 23, 2012 at 2:32 AM

• Fibro Duck www.fibroduck.com/ www.fibroduck.com/ UK site raising awareness of fibromyalgia Posted June 26, 2012 at 3:02 AM

• FMA UK Forum www.fmauk.org/phpBB3/viewtopic.php?f=7&t=40005 www.fmauk.org/phpBB3/viewtopic.php?f=7&t=40005 Fibromyalgia UK's Forum Posted June 26, 2012 at 3:27 AM

• ME/CFS Australia (SA) sacfs.asn.au/fibromyalgia/index.htm sacfs.asn.au/fibromyalgia/index.htm South Australian Group Posted June 26, 2012 at 3:31 AM

• Fibromyalgia Support Net www.fibromyalgia-support.net/index.htm www.fibromyalgia-support.net/index.htm This no-frills site was created by fibromyalgia sufferer Mary Clarke and her husband, Maurice. The Clarkes emphasize that coping with fibromyalgia often requires the support and help of a loving partner. Posted June 26, 2012 at 3:39 AM

Crisis, depression, health, housing...

• Lifeline www.lifeline.org.au/ www.lifeline.org.au/ Online and phone crisis chat and help Posted June 30, 2012 at 6:32 AM

• Headspace www.headspace.org.au/ www.headspace.org.au/ "If you're aged 12 - 25 and are going through a rough time, we're here to help." Mental, sexual and general health issues, family and relationship problems, housing and accommodation, and issues with alcohol and other drugs. Posted February 19, 2013 at 2:54 AM

• Black Dog Ride www.blackdogride.com.au/ www.blackdogride.com.au/ "Depression is an illness, not a weekness" Black Dog Ride began as one man's personal quest to complete a solo motorbike trip around Australia to raise community awareness of depression. Posted October 4, 2012 at 6:23 AM

• Beyond Blue www.beyondblue.org.au/index.aspx? www.beyondblue.org.au/index.aspx? Help with Depression and anxiety Posted June 30, 2012 at 6:34 AM

• Reachout au.reachout.com/ au.reachout.com/ Youth Help website for all types of issues Posted June 30, 2012 at 6:37 AM

Government Departments, NGOs and other organisations that offer assistance

• jobaccess.gov.au/advice/disability/pages/fibromyalgia.aspx Check this one out about working with Fibromyalgia Posted January 28, 2012 at 2:00 AM

• Independent Living Centre www.ilc.com.au/ www.ilc.com.au/ The Independent Living Centre of Western Australia (ILCWA) is a not for profit organisation staffed by teams of qualified and experienced health professionals who provide customers who have disabilities, mobility and accessibility problems with personalised assistance to find the best solution for their needs that will maximise their quality of life. Posted June 6, 2012 at 1:05 AM

• Arthritis and Osteoporosis WA www.arthritiswa.org.au/ www.arthritiswa.org.au/ The objective of Arthritis & Osteoporosis WA is to reduce the incidence and disabling effects of arthritis, osteoporosis and related conditions in the people of WA. Posted July 1, 2012 at 12:42 AM

• Virtual Medical Center www.virtualmedicalcentre.com www.virtualmedicalcentre.com Australia Posted April 21, 2010 at 10:10 PM

• Pain Clinic - Fremantle www.fh.health.wa.gov.au/Utilit... (more) www.fh.health.wa.gov.au/Utilities/BinaryDownload.aspx?BinaryField=DocumentBinary&BinaryTable=TBLEDCMSDOCUMENTS&BinaryID=DOCUMENTID&BinaryIDValue=5199 How to contact them etc Posted June 26, 2012 at 4:13 AM

• WA Therapeutic Advisory Group www.watag.org.au/watag/docs/Neuropathic_Pain_Advisory_Note_Dec07.pdf www.watag.org.au/watag/docs/Neuropathic_Pain_Advisory_Note_Dec07.pdf Guidelines for the treatment of neuropathic pain, Contact details for Pain Clinics in Perth Posted June 26, 2012 at 4:18 AM

Other sites and blogs that regularly post great info

• Fibromyalgia & Chronic Fatigue chronicfatigue.about.com/ chronicfatigue.about.com/ A blog written by Adrienne Dellwo. Full of information. Great newsletter as well Posted June 26, 2012 at 3:08 AM

• Web MD www.webmd.com/fibromyalgia/default.htm www.webmd.com/fibromyalgia/default.htm U.S.Medical Information site Posted June 26, 2012 at 3:12 AM

• National Fibromyalgia Research Association www.nfra.net/ www.nfra.net/ What???s new in fibromyalgia research and education Posted June 26, 2012 at 3:15 AM

• Fibro and Surgery www.myalgia.com/surgery_guidance.htm www.myalgia.com/surgery_guidance.htm Fibromyalgia Information Foundation (FIF) information on having surgery whilst having fibro Posted June 26, 2012 at 3:35 AM

• Mayo Clinic and Fibro www.mayoclinic.com/health/fibromyalgia/DS00079 www.mayoclinic.com/health/fibromyalgia/DS00079 The Mayo Clinic's Fibromyalgia Section Posted June 26, 2012 at 3:37 AM

• IBS Autralia www.ibis-australia.org/ www.ibis-australia.org/ IBIS Irritable Bowel Information & Support Association of Australia Inc. Posted June 26, 2012 at 3:44 AM

• Act Mindfully www.actmindfully.com.au/ www.actmindfully.com.au/ Acceptance and Commitment Therapy (ACT) is a unique and creative model for both therapy and coaching, based on the innovative use of mindfulness and values.The aim of ACT is to maximise human potential for a rich, full and meaningful life Posted October 27, 2012 at 4:52 AM

There are some very informative blogs written by people with fibro. Here are a few.

• Discuss Fibromyalgia Blog www.discussfibromyalgia.com/ www.discussfibromyalgia.com/ Written by Dr Ashley Rusnak, founder of Fibromyalgia Seattle Posted July 1, 2012 at 6:28 AM

• The Fibromyalgia Experiment fibromyalgiaexperiment.com/ fibromyalgiaexperiment.com/ Conquering the Business World & Fibromyalgia. A young woman's blog about how she manages her life with fibro. Posted July 1, 2012 at 6:35 AM

• Living With Fibro www.livingwithfibro.org/profiles/blog/list www.livingwithfibro.org/profiles/blog/list A blog where anyone with fibro can contribute. Lots of personal experiences to read about. Posted July 1, 2012 at 6:36 AM

• Fibromyalgia and Chronic Fatigue chronicfatigue.about.com/ chronicfatigue.about.com/ A blog well worth following. Written by Adrienne Dellwo. Posted July 1, 2012 at 6:49 AM